Meet Nathaniel Newman, a young man whose life story is nothing short of inspirational. Born with Treacher Collins Syndrome, a condition that affects facial and jaw bone development, he has spent his life overcoming challenges and breaking barriers. The syndrome may have given him a unique appearance, but it has not hindered his cognitive abilities or his determination to lead a fulfilling life.
Early Life and Diagnosis
Nathaniel’s journey began when he was born to Magda and Russel Newman. His parents had no idea that their newborn son would be diagnosed with Treacher Collins Syndrome, a genetic condition that was unknown to them at the time. The diagnosis came as a surprise, and Nathaniel was immediately moved to the neonatal intensive care unit (NICU) where he spent the first month of his life.
Despite the unexpected circumstances of his birth, Nathaniel’s parents quickly adapted and began learning about his condition. They took it upon themselves to become informed about Treacher Collins Syndrome and to find ways to give their son the best life possible.
Medical Challenges and Surgeries
Living with Treacher Collins Syndrome meant that Nathaniel had to face numerous medical challenges from a young age. By the time he was six weeks old, he had already had a tracheostomy due to difficulties breathing, a complication of his condition. This procedure had a significant impact on his daily life, limiting his activities and requiring constant medical supervision.
Over the years, Nathaniel has undergone nearly 70 surgeries to manage his condition. Each procedure came with its own set of risks and recovery times, but they were necessary steps in ensuring Nathaniel’s health and quality of life. Despite the hurdles, Nathaniel and his family faced each challenge head-on with resilience and courage.
Breakthrough Surgery and Its Impact
In 2016, Nathaniel underwent a groundbreaking surgical procedure that would change his life forever. Under the skilled hands of Dr. Richard Hopper at the Seattle Children’s Craniofacial Center, Nathaniel underwent a subcranial rotation distraction. This innovative surgery repositioned his face, allowing him to breathe without the help of a tracheostomy.
The success of the surgery marked a significant milestone in Nathaniel’s life. For the first time in nearly 13 years, he could breathe without a tracheostomy. It was a life-changing moment that gave Nathaniel a newfound sense of freedom and independence. The tracheostomy was removed in January 2017, and Nathaniel was able to start a new chapter of his life, free from the restrictions that had previously limited him.
Influence of the Movie “”Wonder””
In 2017, the movie “”Wonder”” arrived on the big screen. Based on R.J. Palacio’s book, the story revolves around a boy living with a similar condition to Nathaniel’s. This film was more than just entertainment, it was an opportunity for the world to gain a deeper understanding and acceptance of facial differences.
The movie’s impact was felt not just by the audience, but by Nathaniel himself. The shift in public perception that the movie triggered helped to make Nathaniel’s school life more comfortable. It encouraged compassion, inclusivity, and understanding amongst his peers. In a way, the movie “”Wonder”” helped society to see the person behind the condition.
Personal and Family Support
Behind every successful journey are pillars of support and for Nathaniel, these pillars were his family. His parents, Magda and Russel, along with his younger brother Jacob, have been his constant source of strength. They stood by him, providing emotional and physical support throughout his medical journey.
Magda, Nathaniel’s mother, has been particularly supportive. Even amidst her own battles with cancer, she remained a beacon of strength for her son. The resilience of the family and Nathaniel’s own optimism have been fundamental in overcoming the challenges posed by his condition.
Advocacy and Writing
Nathaniel and his mother took their experiences and turned them into inspiring narratives. Magda penned down her journey in a book titled “”Normal: A Mother and Her Beautiful Son,”” while Nathaniel authored “”Normal: One Kid’s Extraordinary Journey.”” Their stories highlight the beauty of individuality and the importance of accepting differences.
The books not only provide a glimpse into their lives but also aim to inspire and educate. They serve as a reminder that what makes us different also makes us unique and that these differences should be celebrated, not shunned. Through their words, Nathaniel and Magda continue to advocate for acceptance and understanding.
Current Life and Activities
Nathaniel’s life is a testament to the power of resilience and courage. His journey with Treacher Collins Syndrome has not stopped him from embracing life with open arms. Today, he is an active young man who enjoys various activities and hobbies, defying the limitations that were once a part of his daily life.
One of Nathaniel’s passions is tae kwon do, a martial art that requires both physical strength and mental discipline. His dedication to this sport shows his determination to challenge himself and his ability to overcome obstacles. His other hobbies include playing with Legos and diving into the creative world of Minecraft, activities that allow him to express his creativity and problem-solving skills.
These activities and hobbies are more than just pastimes for Nathaniel. They are an affirmation of his ability to lead a fulfilling life, despite the challenges posed by his condition. His active participation in these activities also sends a powerful message to others living with similar conditions: that they too can lead fulfilling lives, regardless of the hurdles they may encounter.
Nathaniel’s Message of Kindness and Acceptance
More than just an inspirational figure, Nathaniel has taken up the mantle of advocacy, promoting a message of kindness and acceptance. He emphasizes the importance of treating everyone with respect and compassion, irrespective of their appearances.
His message is grounded in his own experiences of living with a facial difference. He understands the pain of being judged based on appearance and the importance of accepting others for who they are, not what they look like.
Nathaniel’s advocacy goes beyond just words. His actions, his attitude, and his resilience serve as powerful reminders of the strength of the human spirit. He is a living embodiment of his message, inspiring others through his actions and his words.
Sharing his story and his message, Nathaniel aims to change the way society views facial differences. He wants to create a world where kindness and acceptance are the norm, not the exception. It’s an ambitious goal, but one that he pursues with passion and determination.
Conclusion
In conclusion, Nathaniel Newman’s story is one of resilience, courage, and determination. Born with Treacher Collins Syndrome, he has faced numerous challenges and overcome them with a positive attitude and unwavering determination. His life is a testament to the power of resilience and the importance of acceptance.
Nathaniel’s journey is not just about overcoming personal challenges. It’s about breaking down societal barriers and promoting acceptance. His story is an inspiration to us all, a reminder that we should not let our differences define us. Instead, we should celebrate them, for they make us who we are.
As we look towards the future, Nathaniel’s story serves as a beacon of hope. It reminds us that with courage, determination, and a little bit of kindness, we can overcome any obstacle that life throws our way.
